The following organisations are non-NHS support organisations for people with Neurological Conditions.
- Dementia UK: website: www.dementiauk.org. Runs a national helpline and email service, called the Admiral Nurse Dementia Helpline, for family, carers, and people worried about their memory. Email: firstname.lastname@example.org
- You can search for local services through an online database called Dementia Connect
Alzheimer’s Society: website : www.alzheimers.org.uk. Runs local groups and services in Bexhill, Hastings and Eastbourne, for example: befriending service, support group for carers, befriending service, day centre.
Headway – the brain injury association. Provides free information sheets and booklets. Website: www.headway.org.uk. Provide a telephone helpline.
Local support is available from the East Sussex branch at :
Headway House, Jackies Lane
Huntington’s disease Association. Their website has a lot of information about this disease; also an online message board where you can find support from people in similar situations. They have Specialist Huntington’s Disease Advisers (SHDAs) in each region of England and Wales.
Website: www.hda.org.uk. To find out the contact details of your nearest support group, email email@example.com.
The MS Society offers support to people diagnosed with MS and their families. Website: www.mssociety.org.uk
They run local groups around the country, for example:
Hastings and Rother Group: email: firstname.lastname@example.org Can be found on Facebook and Twitter. They support exercises classes and a benefits advice service.
There is also a local group in Eastbourne who can be contacted at email: email@example.com
Muscular Dystrophy UK provide support around a wide range of muscle wasting diseases. Their website includes news about medical trials and research into new treatments.
Parkinson’s UK aims to drive better care, treatments and quality of life for those with this disease. They have an informative website – www.parkinsons.org.uk.
They provide local advisors and support groups. In Eastbourne, the advisor can be contacted on : firstname.lastname@example.org
For Bexhill, Hastings and Rother, contact the local advisor at: email@example.com.
Progressive Supranuclear Palsy
Progressive Supranuclear Palsy (PSP) is a disease that is similar to Parkinson’s disease but much rarer. The PSP Association supports those with a related condition called corticobasal degeneration (CBD).
Their website: www.pspassociation.org.uk has a wide range of downloadable information sheets.
PSP commonly affects the eyes. Problems with vertical gaze may be helped by using specialist prism glasses that are available free of charge for those living in the UK via the helpline.
They produce a magazine ‘PSP Matters’ and you can also sign up to their newsletter.
You can sign up to a newsletter – firstname.lastname@example.org
The ‘Stroke Association’ describes itself as the UK’s leading charity dedicated to conquering stroke. Their website provides information on types of stroke and effects of stroke. Find details of the local stroke recovery service through the website or via e-mail.